“700,000 stitches” dropped to 30,000! Sky price life -saving medicine enters medical insurance, parents of Shandong SMA children cry

Source: Qilu.com

December 3,

The State Medical Insurance Administration released news,

Global first

Used to treat rare diseases of spinal muscle atrophy (SMA)

Precise targeted therapeutic drugs,

Nosner’s sodium injection is officially included in medical insurance,

It will be officially implemented from January 1 next year.

Nosnama injection

It was officially approved to be listed in China in 2019.

“70万一针”降至3万!天价救命药进医保,山东SMA患儿家长喜极而泣

The price is 699,700 yuan.

“70万一针”降至3万!天价救命药进医保,山东SMA患儿家长喜极而泣

The child needs to be used 6 times in the first year,

Use medicine 3 times a year in the future, and keep it for life.

“70万一针”降至3万!天价救命药进医保,山东SMA患儿家长喜极而泣

“5 ml of potion is nearly 700,000, and one milliliter is 20 drops.

A drop is 7,000 yuan. “

The parents of the children are called “savior life medicine”.

Later

“70万一针”降至3万!天价救命药进医保,山东SMA患儿家长喜极而泣

550,000 yuan

, National unified price.

“70万一针”降至3万!天价救命药进医保,山东SMA患儿家长喜极而泣

And after incorporating medical insurance

According to estimates,

The medicine per pin

“70万一针”降至3万!天价救命药进医保,山东SMA患儿家长喜极而泣

Will not exceed 33,000 yuan

Essence

After the results were announced,

Ma Hengxiang cried!

Ma Hengxiang is

SMA’s father, the father of the little stone,

“70万一针”降至3万!天价救命药进医保,山东SMA患儿家长喜极而泣

It is also a reporter from the Qilu Channel of Shandong Radio and Television.

From the diagnosis of small stones in 2018,

It has been three years now.

“70万一针”降至3万!天价救命药进医保,山东SMA患儿家长喜极而泣

He is strong with his father,

Accompany the child to fight with the disease.

“70万一针”降至3万!天价救命药进医保,山东SMA患儿家长喜极而泣

Listen to Ma Hengxiang’s affectionate narration:

“Three Years of Little Stone”

Tears ▼

at the same time,

The news of seeing life -saving pills incorporated in medical insurance,

“Shandong SMA House Rehabilitation Exchange Group” boiled.

“70万一针”降至3万!天价救命药进医保,山东SMA患儿家长喜极而泣

“Crying, finally waiting”

“Children are saved”

“I was so excited to tears, and the child’s illness really affords it.”

The negotiation site reproduces “soul bargain”

“Every small group should not be abandoned”

“70万一针”降至3万!天价救命药进医保,山东SMA患儿家长喜极而泣

In 2021, in the adjustment of the National Medical Insurance Drug Catalog, 7 rare diseases entered the medical insurance directory through negotiation.

Rare diseases, also known as “orphan diseases”, refer to a type of disease with low incidence and rare, generally severe, chronic, hereditary diseases, and often endangered life.

Taking spinal muscle atrophy (SMA) as an example, this is a neur variability due to the degeneration of the anterior angle of the spinal cord and the extension of the marrow movement, which causes the proximal limb and the torso, symmetrical muscle weakness and muscle atrophy. It is estimated that Chinese newborn SMA patients have added 1,200 new people each year, with about 30,000 patients with existing patients. With the progress of the disease, muscle weakness can further lead to abnormal skeletal systems, respiratory, digestive systems, and other system abnormalities. Highness failure is the most common cause of death.

Drugs that treat rare diseases of spinal muscle atrophy

Nosina sodium injection,

Just this year’s negotiation varieties.

In this negotiation,

“70万一针”降至3万!天价救命药进医保,山东SMA患儿家长喜极而泣

The two sides took an hour and a half,

Corporate negotiating representatives have discussed 8 times.

For the children, both parties do their best.

8 negotiating process exposure

↓↓↓

Zhang Jinni, representative of the State Medical Insurance Bureau, said before the negotiations, “We hope that the company must get the greatest sincerity in the first round of quotation … Every small group should not be abandoned … Our goal is consistent, and our goals are consistent, and our goals are consistent, and our goals are consistent, and our goals are consistent, and our goals are consistent, and our goal is consistent, and We don’t want the routine … “

First offer

Corporate negotiating representatives: The quotation authorized by the headquarters is 53,680 yuan per bottle.

Zhang Jinni, representative of the National Medical Insurance Bureau, said that from the current price, the difference is really large.

Second offer

Corporate negotiation representative: 48,000 yuan per bottle

Zhang Jinni, representative of the National Medical Insurance Bureau: “The China Medical Insurance Fund is actually a very difficult year this year, including the early stage of the new crown pneumonia, and the reduction of the medical insurance fund is slow … So we still have the courage to carry out our medical insurance negotiations this year. Work, it is really appreciated that this very big determination of the people’s health … “

The third offer

Corporate negotiation representative: 45,800 yuan per bottle

“70万一针”降至3万!天价救命药进医保,山东SMA患儿家长喜极而泣

Zhang Jinni, representative of the National Medical Insurance Bureau: “The price of 45800 is difficult, I hope the company will work harder.”

Fourth offer

“70万一针”降至3万!天价救命药进医保,山东SMA患儿家长喜极而泣

Corporate negotiation representative: 42,800 yuan per bottle

Zhang Jinni, representative of the National Medical Insurance Bureau: “There is still a certain distance from us to further negotiations.”

Fifth offer

Corporate negotiating representative: 40,800 yuan per bottle

Zhang Jinni, representative of the National Medical Insurance Bureau: “Continue to work hard …”

Sixth offer

“70万一针”降至3万!天价救命药进医保,山东SMA患儿家长喜极而泣

Corporate negotiation representative: 37,800 yuan per bottle

Zhang Jinni, representative of the National Medical Insurance Bureau: “The price of 37800, we can continue to talk about … The space that can be adjusted at the low price of our negotiation team is 0. We are at this base price. We stepped in and we met. Line, it’s really difficult, in fact, I felt that my tears were almost falling … “

Corporate negotiating representative: “We are too, we are almost crying …”

Seventh quote

Corporate negotiation representative: 35918 yuan per bottle

Zhang Jinni, representative of the National Medical Insurance Bureau: “This price, I think you lack of sincerity … This primary school mathematics problem is really not difficult …”

Eighth offer

Corporate negotiation representative: 34020 yuan per bottle

Zhang Jinni, representative of the National Medical Insurance Bureau: “This price, I think the previous efforts (all of them are in vain), I’m really a bit sad …”

Final finalization

National Medical Insurance Bureau: 33,000 yuan per bottle

Corporate negotiating representatives finally discussed and agreed to this price!

Netizens hot review

The people’s health first, thank you for the great country!

Source: Qilu.com · Lightning News Integration of Qilu Channel Video, CCTV News, Xinyao River client, etc.

“70万一针”降至3万!天价救命药进医保,山东SMA患儿家长喜极而泣

Author: ArticleManager